Kids In Pain is always looking for useful websites to try and inform young people and their families about all chronic pain conditions. We have found a few websites that we thought were useful and have put them all into one section of the site. Please read them as hopefully they will help you or someone else!!
If YOU have any articles that you think are useful and aren't currently available on the site, please contact us and we will check them out and put them onto the site for you!!!
Useful Links about Complex Regional Pain Syndrome:
American RSD Hope - An American Organisation aimed to raise money and awareness for CRPS
Rock Out To Knock Out RSD - An Organisation founded by Ashley Goodall (a CRPS sufferer since she was just 8 years old) aimed to try and raise awareness for RSD and help others through Rock Concerts!!
Reflex Sympathetic Dystrophy Association - An Organisation founded to raise awareness and research into CRPS/RSD
RSD Escape - A website created by a teenager with CRPS to help other sufferers and take their mind off the pain!!
RSD-CRPS - A non-profit organisation founded by two adults with CRPS to try and raise awareness about the condition and make Doctors more aware!!!
For Grace - A peaceful and inspirational website written by a lady who developed CRPS as a Ballerina!!
RSD Arena - A valuable website offering hope and support to CRPS sufferers!!!
Storms RSD Awareness - A good site aimed to raise awareness for CRPS!
RSD RX - Doctor Hooshmands Website all about CRPS! Doctor Hooshmand is one of the top Doctors in the US for treating CRPS and other chronic pain disorders so you will find lots of useful information on the site including a diet specifically for CRPS Sufferers!!!
Fighting RSD - A great website aimed to raise awareness and support for CRPS!
RSD Awareness - A useful website created by parents and grandparents of children with CRPS aimed to try and let kids and young people speak out about CRPS and spread awareness!
RSD Help - A useful site with lots of information on CRPS that is easy to understand!!
Messy Stuff: A Life With RSD Blog - A Blog written by 14 year old CRPS Sufferer, Alison Day (Founder of Kids in Pain) about her life with CRPS!!!
Going Down Swinging: A RSD Blog - A great, inspirational blog written by a lady suffering from CRPS about all of the challenges she faces on a daily basis with CRPS!
The Six Of Us! - A great blog written by mum to 4 CRPS sufferer, Kate about the challenges in her life with CRPS!!
RSD/CRPS News and Information - A useful blog with all of the latest information on CRPS!
Useful Links about Hypermobility Syndrome:
Teens Hypermobility Syndrome Association - A valuable site especially for young people and teenagers suffering from Hypermobility Syndrome (HMS)!!
Great Ormond Street Hospital - Hypermobility Syndrome - A link to Great Ormond Street Hospital's Website explaining all about Hypermobility Syndrome and offering Support!!
Arc - A great site with everything you need to know about Hypermobility Syndrome!!
Useful Links about Arthritis:
Athritis Care - A UK Organisation founded to try and raise awareness about Arthritis and support sufferers!!
Arthritis Research Campaign - A great website with all of the latest information on research into Arthritis!!
Athritis Foundation - A Foundation created to raise more awareness for Athritis!!
The Arthritis Society - A valuable site with lots of useful information on Arthritis!!
Useful Links about Fibromyalgia:
UK Fibromyalgia Association - A UK based Association aimed to raise awareness and support for Fibromyalgia!!
Fibromyalgia Support Group for Surrey and Sussex - A Support Group for Fibromyalgia Sufferers in Surrey and Sussex (UK)!!
Arc - All you need to know about Fibromyalgia!
Fibromyalgia in Children - A useful website explaining Fibromyalgia in Children and what treatment options are available!!
Useful Links about Migraines and Headaches:
Headache Expert - A useful website explaining all about different types of Headaches and Migraines!
Useful Links about Medications:
Rx List - A useful website with lots of information on medications and any possible interactions and side effects etc.
Medline Plus - A great site with lots of valuable information on medications for all different types of conditions!
Useful Links to Help Others Understand Chronic Pain Conditions Better:
But You Don't Look Sick! - A valuable website aimed to help others understand what it is like to live with a Chronic Pain Condition!
Not Done Living - A great website with an open letter to those without a Chronic Pain Condition - check it out and hopefully it will help your friends and family understand what you go through a little more!
Kids In Pain is not responsible for the content of the links. The sole responsibility is with the writer! We provide this information as a public service and DO NOT claim to be medical professionals. If you are uncertain about any of the information provided in the links, contact the writer or a Medical Proffesional.